Archive | November, 2017

Becoming an Optimist…

15 Nov

It matters not how ideal our life may seem to others, or how we pretend all is well, we all encounter those days where nothing, and I mean nothing seem to go right, how do you cope?

I am learning day by day to just be! To be present, to be still, and to accept that no matter how hard I try there will be days where nothing goes according to plan. But, the off days are much easier to handle than an off week or two.

My current situation: I have been mostly immobile  for over two weeks due to an unfamiliar health issue. Living with a chronic illness such as sickle cell anemia it shouldn’t come as much of a surprise when the body starts acting up or you experience new symptoms. After all, Sickle Cell Anemia affects EVERY area of your body, no part of the body is exempt, from your brain to your toe nails.

These new symptoms however startled me. Dizziness, I have experienced dizziness before because I struggle with abnormally low blood pressure but, this, this is different. Imagine being so dizzy that the very ground beneath you moves, the roof above you spins rapidly and you cannot maintain a steady balance. The only thing I can possible equate this experience to; as a child my very first trip to the amusement park I was so excited to ride the rides but found out half way into the ride I had horrible motion sickness, not only did I barf but I lost all sense of gravity. (That damn fling-mi-dash at Hope Gardens, Jamaica)

I was recently asked, “Aren’t you use to this by now?!” To which I sarcastically grinned and replied as calmly as I possibly could “Can one ever get use to being sick?!” Normally I would freak, stressing about being confined to a bed, which would only result in a worsened crisis that would end with me being in the place I hate most (the hospital) but, as much as I hate this, and it’s really starting to annoy me, I am choosing to take it all in strides believing that this too shall pass, that everything happens for a reason and all things work together for the good! From a pessimistic belief to optimism, ha, it feels better this way!

This is how I cope, I talk to myself! I’m not crazy (well, maybe a little) but, my current self talk: Well Larissa, It’s been almost three weeks, it’s about time you get back on your feet. They’re places to go, things to do and people to see and being in bed is just not working for me! This bout of illness has just about run its course, I’m so over this now whatever the source. Regardless of what the doctor says child you never listen, you are not about to start now by giving in. So with the dawn of the new day, you’re going to get up comes what may, if you stagger, if you stumble and even if you fall, you’ll simply get back up and try again, cause girl you’re a survivor above all. With that said, I await daybreak.

 

SETBACKS…

8 Nov

Consistency have always been a major issue for me, I struggle in this area not because I’m lackadaisical or lazy (though sometimes I am), but simply because my life have been a series of leaps and bounds and setbacks. This isn’t mental (though in some cases it is) this is simply because there’s a major factor at play and that is, living with a chronic disease. I make no excuses, I do what I have to do, working as hard as I possible can when I’m well, then, they’re those days when…

The pass few weeks have been a perfect example of experiencing highs, then accepting the lows. I’ve accomplished a great deal within the pass few months but in the midst of executing, prepping and planning there is another major part of my life I must contend with, living with Sickle Cell Anemia. Much like being tight lipped about being sexually abused as a child, this other part of my life I NEVER speak about openly, until now!

Living with a chronic disease such as SCA is debilitating to say the least. The good days are great but, on the days when every part of your body aches, your energy is gone and you struggle to even take a breath, it’s bad! To avoid the questions, the stares, the pity glances the insensitive and sometimes crude comments, I seldom speak about living with this disease. Outside of my family, a few close friends and my medical team only a very selective few knows how challenging a plight surviving with this disease has been.

However, like everything else in my life it’s about acceptance, realistically speaking I’m living with this thing that sometimes renders me immobile for days, at times weeks! I used to be so bummed about this and if I’m to be honest, ashamed. Yes, I use to be ashamed of being sick… My name is Larissa H. Rhone I have sickle cell anemia, sickle cell anemia does NOT have me… We speak from here on out.