Consistency have always been a major issue for me, I struggle in this area not because I’m lackadaisical or lazy (though sometimes I am), but simply because my life have been a series of leaps and bounds and setbacks. This isn’t mental (though in some cases it is) this is simply because there’s a major factor at play and that is, living with a chronic disease. I make no excuses, I do what I have to do, working as hard as I possible can when I’m well, then, they’re those days when…
The pass few weeks have been a perfect example of experiencing highs, then accepting the lows. I’ve accomplished a great deal within the pass few months but in the midst of executing, prepping and planning there is another major part of my life I must contend with, living with Sickle Cell Anemia. Much like being tight lipped about being sexually abused as a child, this other part of my life I NEVER speak about openly, until now!
Living with a chronic disease such as SCA is debilitating to say the least. The good days are great but, on the days when every part of your body aches, your energy is gone and you struggle to even take a breath, it’s bad! To avoid the questions, the stares, the pity glances the insensitive and sometimes crude comments, I seldom speak about living with this disease. Outside of my family, a few close friends and my medical team only a very selective few knows how challenging a plight surviving with this disease has been.
However, like everything else in my life it’s about acceptance, realistically speaking I’m living with this thing that sometimes renders me immobile for days, at times weeks! I used to be so bummed about this and if I’m to be honest, ashamed. Yes, I use to be ashamed of being sick… My name is Larissa H. Rhone I have sickle cell anemia, sickle cell anemia does NOT have me… We speak from here on out.